Wednesday, March 11, 2009
I don't know when it started....
i have never even thought about blogging about this before... truthfully, when Iim not painful... mostly i forget about it... the pain. strange how that works... actually scares me, because i figure one day i will miss an important sign of some illness that will be much more problematic than forgetting to tell my doc that my gallbladder was going bad years ago... eventually, i got around to telling the doc... actually only after a friend had her gb out and then aw my symptoms and said "girl... you need that thing out!" she, of course was right... the first i remember about hte constant or intense muscle/tendon type pain was when it went away during my pregnancy with nick. i have no clue how ling i have been suffering with this other than to say at least since 2001... probably should have done something... i am also not sure how long i have been complaining to my doc about it.. probably should ask... but waht i know is that it is insidious... but then can disappear for days, occasionally weeks with no notice... prednisone helps for now... it gives me a few weeks of reprieve... but mostly i want to know what it is... i need a name... i have lost 50 pounds to date and feel good, have tons of energy most days... but when i do exercise or go hiking or do any exercise...wow do i pay... i might get away with a few workouts... but within the week... here comes the pain... i am not talking about workout pain... i am talking about muscles so sore it hurts to touch them.... not usually unbearable... but remember, i have a huge pain tolerence... so the most recent flare up started about 3 weeks ago... i have gone off milk... doesn't really help... i have gone off gluten... no big improvement... but may try this again... truth be told, it may not have been long enough... i do know that when my allergies flare, i will often have a flare... so i have known for a long time that it was inflamatory... but i still need a name... so i went today... doc is running a few more test.. but i think i need to see someone new... a new perspective... but this time... no mention of my perfession will be mentioned (at least in the beginning)... the scary thing is, i know my body... unlike anyone i have ever met... probably a combination of my knowledge, my sheer number of weird physical issues and my intuition... I can almost immediately feel inflamation, hormone surges, etc... i know days before my asthma flares...and yes, i start my meds... the hormones... well, can't do a darn thing about them except honor them... lovely thing, hormones... can't live with them.. won't get you off of a muder charge.... so the diagnosis... still awaits me... the most recent tests might finnaly push us in a good direction, or it may make things more mysterious.... the one test, may, if positive... show that i have a lack of some of the immune complexes... good i might have a diagnosis... bad i may be on shots for the rest of my life... it is a tade off... i probably have some weirdo disease that only men over 60 get.... and since i am a women under 45... they aren't even looking fo it... lol... thanks for listening... smooches...
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i can't read a medical issue without giving a random guess -- like dr. gregory house, i guess it's about solving the mystery. so if it were me, i would look at my minerals. not something i'm eating that i shouldn't (like gluten & dairy), but maybe something i'm not eating that i should. like minerals. especially calc/mag. with sydney when i ate like crap & took no supp's, my muscle cramps were out of control. this pregnancy, i supplemented when i started getting them & they went away immediately. IMO (like i'm some doctor), a calc/mag deficiency shows in people in many ways, & each person has a different dominant symptom. it's interesting that the soreness went away in your pg with nick -- sounds like a big clue. but everyone looks at the hormonal changes of pg as the starting point...don't forget that you probably ate & supplemented differently. my tourette's used to "wax & wane" for no discernible reason, just what it does they said, until i figured out my own reasons. :-)
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